RED DE ORGANIZACIONES INTERNACIONALES DE ENFERMOS CON PATOLOGIA MITOCONDRIAL
Pacientes mito Internacional (IMP)
Es una red de organizaciones nacionales de pacientes implicados en la enfermedad mitocondrial.
ESTE NUEVO ARTÍCULO AMPLIA EL ANTERIOR "LISTA DE GRUPOS DE FACEBOOK..
LA ORGANIZACIONES MIEMBROS DE IMP
- www.aepmi.org - association of mitochondrial disease patients, Spain
- www.amdf.org.au - australian mitochondrial disease foundation, Australia
- www.association-ammi.org - association for mitochondrial disease patients, France
- www.boks.be/site - association for children and adults suffering from metabolic disease, Belgium
- www.dgm.org - German organization for muscular disease, Germany
- www.thelilyfoundation.org.uk - mitochondrial patient organization, United Kingdom
- www.muscular-dystrophy.org - muscular dystropy campaign, United Kingdom
- www.mitocanada.org - mitochondrial disease patient organization, Canada
- www.mitocon.it - mitochondrial patient organization, Italy
- www.umdf.org - united mitochondrial disease foundation, United States of America
- www.stofwisselingsziekten.nl - association for children and adults with metabolic disease, The Netherlands (Holanda)
- www.vsn/Spierziekten Nederland.nl - Dutch association for muscular disease, The Netherlands
OTROS SITIOS DE INFORMACIÓN PARA LOS PACIENTES
- www.LHON.org - patient information site on Leber's Hereditary Optic Neuropathy
- www.cmdn.org.uk/ - the children's mitochondrial disease network, United Kingdom
- www.rareconnect.org - The Eurordis website with a special forum on Leigh's disease
ORGANIZACIONES EUROPEAS
- www.eurordis.org - European organization for rare disease patients
- www.rarediseaseday.org - Rare Disease Day, annual event
- www.enmc.org - European Neuro Muscular Centre
- www.ec.europa.eu - European Commission on research and innovation into rare diseases (FP6/FP7/FP8)
- www.itn-meet.org - Mitochondrial European Educational Training, MEET
VARIAS ORGANIZACIONES / COMPAÑIAS
- www.orpha.net - international portal for information on rare diseases and orphan drugs
- www.khondrion.nl - Mitochondrial Medicine Company
- www.ncmd.nl - Nijmegen Center for Mitochondrial Disorders
- www.mitonet.org - German network for mitochondrial disease
- www.mitochondrial.net - international network for mitochondrial research
- http://mitosoc.org/blogs/ - The Mitochondrial Medicine Society
EVENTOS
También obenido de http://www.mitopatients.org/links
Prof. Dr. Fernando Galan